Website stats for Cystinosis - cystinosis.org
Welcome to theCystinosis Research Network Cystinosis is a rare, genetic, metabolic, lysosomal storage disease that causes an abnormal accumulation of the amino acid cystine in various organs and tissues of the body such as the kidneys, eyes, muscles, pancreas and brain. The cystine accumulation causes widespread tissue and organ damage. Cystine accumulation can lead to kidney failure, muscle...
cystinosis.org was registered 2 decades 5 years ago. It has a alexa rank of #5,652,444 in the world. It is a domain having .org extension. It is estimated worth of $ 240.00 and have a daily income of around $ 1.00. As no active threats were reported recently, cystinosis.org is SAFE to browse.
Traffic Report
| Daily Unique Visitors: | 155 |
| Daily Pageviews: | 310 |
Estimated Valuation
| Income Per Day: | $ 1.00 |
| Estimated Worth: | $ 240.00 |
Search Engine Indexes
| Google Indexed Pages: | Not Applicable |
| Yahoo Indexed Pages: | Not Applicable |
| Bing Indexed Pages: | Not Applicable |
Search Engine Backlinks
| Google Backlinks: | Not Applicable |
| Bing Backlinks: | Not Applicable |
| Alexa BackLinks: | Not Applicable |
Safety Information
| Google Safe Browsing: | No Risk Issues |
| Siteadvisor Rating: | Not Applicable |
| WOT Trustworthiness: |
 Very Poor
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| WOT Privacy: |
Very Poor
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| WOT Child Safety: |
Very Poor
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Website Ranks & Scores
| Alexa Rank: | 5,652,444 |
| PageSpeed Score: | 89 ON 100 |
| Domain Authority: |
49 ON 100 
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| Bounce Rate: | Not Applicable |
| Time On Site: | Not Applicable |
Web Server Information
Hosted IP Address:
199.16.172.132
Hosted Country:
US
Location Latitude:
29.4254Location Longitude:
-98.4893Traffic Classification
| Total Traffic: | No Data |
| Direct Traffic: | No Data |
| Referral Traffic: | No Data |
| Search Traffic: | No Data |
| Social Traffic: | No Data |
| Mail Traffic: | No Data |
| Display Traffic: | No Data |
Search Engine Results For cystinosis.org
Cystinosis Research Network
The Cystinosis Research Network's vision is the acceleration of the discovery of a cure, ... Welcome to theCystinosis Research Network ... [email protected] ...
Cystinosis 101 - Cystinosis Research Network
Cystinosis 101. Print Friendly, PDF & Email. Cystinosis is a rare genetic, ...
About Cystinosis - Cystinosis Research Network
About Cystinosis. Print Friendly, PDF & Email. Cystinosis is a rare, genetic, ...
Managing Cystinosis - Cystinosis Research Network
Of the three types of cystinosis (infantile nephropathic, late onset and ocular), ...
Cystinosis Foundation UK | For a brighter future…
Cystinosis is a rare inherited disease occurring in about 1 in 200,000 births within developed countries. It occurs when the mechanism removing excess cystine ...
cystinosis and its treatment - Cystinosis Foundation UK
- https://www.cystinosis.org.uk/wp-content/uploads/2010/01/pj_20021026_cystinosis.pdf
Mr Terry is founder and adviser, Cystinosis ... Cystinosis is a rare inherited disease with an incidence, in developed countries, of about ... w w w.cystinosis. org.uk.
Cystinosis - NORD (National Organization for Rare Disorders)
Cystinosis is a rare, multisystem genetic disorder characterized by the ... https:// rarediseases.org/for-patients-and-families/information-resources/news-patient- ...
What is Cystinosis? - Cystinosis Research Foundation
Cystinosis affects 1 in 100K-200K live births in the US. ... And yet research on complex diseases like cystinosis often leads to ... [email protected].
Information prescription for patients with cystinosis - University ...
Cystinosis: An introduction to cystinosis for patients and families. • Cystinosis: ... www.geneticalliance.org.uk and www.nhs.uk has further information.
Cystinosis in adult and adolescent patients - ScienceDirect.com
https://doi.org/10.1016/j.nefroe.2015.06.010Get rights and content ... Renal replacement therapy is started in patients with cystinosis during the first decade of life ...
Nephropathic Cystinosis - Chiesi USA
https://www.cystinosis.org/support-resources/managing-cystinosis/. Last accessed: December 20, 2019. © 2020 CHIESI USA, Inc. 175 ...
Cystinosis - ERKNet
2019;42:1019–1029. Controversies and research agenda in nephropathic cystinosis: Conclusions from a KDIGO Controversies Conference. Kidney Int ...
The pathogenesis of cystinosis: mechanisms beyond cystine ...
Published Online:01 Nov 2010https://doi.org/10.1152/ajprenal.00318.2010 ... However, cystinosis remains the most common cause of inherited renal Fanconi ...
Cystinosis | NEJM
Cystinosis, a rare autosomal recessive lysosomal storage disease, is due to impaired transport of cystine from lysosomes. The disease results in deposition of ...
Cysteamine therapy: a treatment for cystinosis, not a cure - NCBI -...
Cystinosis as a clinical entity is a progressive dysfunction of multiple organs caused by the ... [accessed June 2011]; https://cystinosis.patientcrossroads.org. 9 .
Severity of phenotype in cystinosis varies with mutations in the ...
Infantile nephropathic cystinosis is a rare, autosomal recessive disease caused by ... December 1999, Pages 2507–2514, https://doi.org/10.1093/hmg/8.13.2507.
Neuropsychological and neuroanatomical phenotype in 17 patients ...
26 Feb 2020 ... Patients with cystinosis have a specific neuropsychological and ... Statistical analysis was performed using R software (http://www.r-project.org).
Cystinosis - EyeWiki
24 Feb 2020 ... Cystinosis is a rare lysosomal storage disease in which cystine accumulates in organs and tissues throughout the body. Although renal disease ...
Nephropathic cystinosis: an update : Current Opinion in Pediatrics
Purpose of review Over the past few decades, cystinosis, a rare lysosomal storage disorder, has ev.
IJMS | Free Full-Text | Bone Disease in Nephropathic Cystinosis ...
Nephropathic cystinosis is an inherited metabolic disorder caused by the lysosomal accumulation of ... 2020, 21(9), 3109; https://doi.org/10.3390/ ijms21093109.
Page Resources Breakdown
Homepage Links Analysis
Website Inpage Analysis
| H1 Headings: | Not Applicable | H2 Headings: | 10 |
| H3 Headings: | 6 | H4 Headings: | 2 |
| H5 Headings: | Not Applicable | H6 Headings: | Not Applicable |
| Total IFRAMEs: | 1 | Total Images: | 42 |
| Google Adsense: | Not Applicable | Google Analytics: | UA-5122372-2 |
Two Phrase Analysis
| Words | Occurrences | Density | Possible Spam |
|---|---|---|---|
| Learn More | 11 | 1.968 % | No |
| with cystinosis | 5 | 0.894 % | No |
| The Cystinosis | 4 | 0.716 % | No |
| Cystinosis Research | 4 | 0.716 % | No |
| treatments and | 3 | 0.537 % | No |
| Research Network | 3 | 0.537 % | No |
| a cure | 3 | 0.537 % | No |
| of the | 3 | 0.537 % | No |
| improved treatments | 3 | 0.537 % | No |
| Research Network’s | 2 | 0.358 % | No |
| Contact Us | 2 | 0.358 % | No |
| About Us | 2 | 0.358 % | No |
| in Your | 2 | 0.358 % | No |
| Support Resources | 2 | 0.358 % | No |
| Your Area | 2 | 0.358 % | No |
| Care Package | 2 | 0.358 % | No |
| Package Program | 2 | 0.358 % | No |
| vision is | 2 | 0.358 % | No |
| discovery of | 2 | 0.358 % | No |
| More Education | 2 | 0.358 % | No |
Four Phrase Analysis
| Words | Occurrences | Density | Possible Spam |
|---|---|---|---|
| Research Network’s vision is | 2 | 0.358 % | No |
| The Cystinosis Research Network’s | 2 | 0.358 % | No |
| Name First Last Email | 2 | 0.358 % | No |
| The Cystinosis Research Network | 2 | 0.358 % | No |
| Network’s vision is the | 2 | 0.358 % | No |
| Cystinosis Research Network’s vision | 2 | 0.358 % | No |
| of improved treatments and | 2 | 0.358 % | No |
| on research and treatment | 1 | 0.179 % | No |
| research and treatment advancements | 1 | 0.179 % | No |
| updates on research and | 1 | 0.179 % | No |
| latest updates on research | 1 | 0.179 % | No |
| provides best clinical practices | 1 | 0.179 % | No |
| and treatment advancements funds | 1 | 0.179 % | No |
| the latest updates on | 1 | 0.179 % | No |
| treatment advancements funds research | 1 | 0.179 % | No |
| research grants and provides | 1 | 0.179 % | No |
| advancements funds research grants | 1 | 0.179 % | No |
| provides the latest updates | 1 | 0.179 % | No |
| grants and provides best | 1 | 0.179 % | No |
| and provides best clinical | 1 | 0.179 % | No |
HTTP Header Analysis
Status-Code: 200
Status: 200 OK
Server: nginx
Date: Mon, 16 Nov 2020 05:13:25 GMT
Content-Type: text/html; charset=UTF-8
Transfer-Encoding: chunked
Connection: keep-alive
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Expires: Thu, 19 Nov 1981 08:52:00 GMT
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Link:
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X-ac: 1.hhn _atomic_dca
Domain Information
| Domain Registrar: |
Public Interest Registry
|
|---|---|
| Registration Date: | 1999-09-11 2 decades 5 years 2 months ago |
Domain Nameserver Information
| Host | IP Address | Country | |
|---|---|---|---|
| ns53.domaincontrol.com | |
97.74.106.27 | United States |
| ns54.domaincontrol.com | |
173.201.74.27 | United States |
DNS Record Analysis
| Host | Type | TTL | Extra |
|---|---|---|---|
| cystinosis.org | A | 558 |
IP: 199.16.173.232 |
| cystinosis.org | A | 558 |
IP: 199.16.172.132 |
| cystinosis.org | NS | 3600 |
Target: ns54.domaincontrol.com |
| cystinosis.org | NS | 3600 |
Target: ns53.domaincontrol.com |
| cystinosis.org | SOA | 3600 |
MNAME: ns53.domaincontrol.com RNAME: dns.jomax.net Serial: 2020073003 Refresh: 28800 Retry: 7200 Expire: 604800 |
| cystinosis.org | MX | 3600 |
Target: cystinosis-org.mail.protection.outlook.com |
| cystinosis.org | TXT | 3600 |
TXT: _globalsign-domain-verification=-yl_ysOg PS0oRge9WViM9aV4pcNvNZP8MFZYgQC770 |
| cystinosis.org | TXT | 3600 |
TXT: MS=ms12769612 |
| cystinosis.org | TXT | 3600 |
TXT: v=spf1 include:spf.protection.outlook.com -all |
| cystinosis.org | TXT | 3600 |
TXT: v=spf1 +a +mx +ip4:67.43.4.244 include:spf.constantcontact.com include:ccsend.com include:confirmedcc.com ~all |
| cystinosis.org | TXT | 3600 |
TXT: _globalsign-domain-verification=0vQYTtQo OGKVA-whBlgMsgESiLtuE1n_NxPk2IV_P0 |
Full WHOIS Lookup
Registry Domain ID:
D10030376-LROR
Registrar WHOIS Server:
whois.godaddy.com
Registrar URL:
http://www.whois.godaddy.com
Updated Date:
2020-09-11T19:19:15Z
Creation Date:
1999-09-10T20:33:29Z
Registry Expiry Date:
2021-09-10T20:33:29Z
Registrar Registration Expiration
Date:
Registrar: GoDaddy.com, LLC
Registrar IANA ID:
146
Registrar Abuse Contact Email: [email protected]
Registrar
Abuse Contact Phone: +1.4806242505
Reseller:
Domain Status:
clientDeleteProhibited
https://icann.org/epp#clientDeleteProhibited
Domain Status:
clientRenewProhibited
https://icann.org/epp#clientRenewProhibited
Domain Status:
clientTransferProhibited
https://icann.org/epp#clientTransferProhibited
Domain Status:
clientUpdateProhibited
https://icann.org/epp#clientUpdateProhibited
Registrant
Organization: Cystinosis Research Network
Registrant
State/Province: Illinois
Registrant Country: US
Name Server:
NS53.DOMAINCONTROL.COM
Name Server:
NS54.DOMAINCONTROL.COM
DNSSEC: unsigned
URL of the ICANN Whois
Inaccuracy Complaint Form https://www.icann.org/wicf/)
>>> Last
update of WHOIS database: 2020-11-16T05:13:00Z
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